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The American College of Cardiology Foundation's NCDR is developing a new, national clinical data registry. The IMPACT Registry™ (IMproving Pediatric and Adult Congenital Treatment) will assess the prevalence, demographics, management and outcomes of pediatric and adult patients with congenital heart disease who are undergoing diagnostic catheterizations and catheter-based interventions. The collection and analysis of this data will facilitate performance measurement, benchmarking, and quality improvement initiatives. The IMPACT Registry will provide significant contributions to the knowledge base and outcomes associated with congenital heart disease. To date, no single registry has collected sufficient national quality-focused data on the management and real-world outcomes of quality-focused data of patients who undergo diagnostic and interventional catheterizations.
Dr. Gerard Martin, Chief of Cardiology at Children’s National Medical Center in Washington, DC, chairs the NCDR IMPACT Steering Committee. Dr. Martin's cardiovascular expertise is evidenced in this Washington Post article. Dr. Martin along with the list of other national experts on the steering committee are developing this groundbreaking registry.
Play an important part in this effort, and help build the gold standard registry for congenital cardiac treatment.
To read an article from Cardiology magazine about IMPACT Registry click here.
Background:
With improved diagnosis, treatment, and survival, the population of patients with congenital heart disease (CHD) is growing. It is estimated that there are at least an equal number of adults and children with CHD.
Currently, little is known about the population of patients with congenital heart disease, particularly with respect to the use and outcomes of catheterization and interventional procedures. To date, most resources have been applied towards increasing the understanding of the anatomy and physiology of CHD, as well as the natural history of common defects. National guidelines have been published which provide recommendations for the appropriate use of diagnostic catheterization, interventional catheterization, and surgical treatments. However, because studies performed in CHD are generally small in number, and because prior registries of CHD have been limited in scope, there is a paucity of evidence-based data. Current national guidelines were derived primarily from expert opinion, and there is a strong need for data to allow optimization and refinement of the guideline recommendations.
Because the prevalence, risk factors, management practices, and outcomes of patients with CHD are poorly characterized, the opportunity to apply appropriate healthcare resources is limited. Some registries have been organized around specific CHD diagnoses or procedures, but these do not allow for an adequate assessment of the variety of procedures and differences in management patterns across the spectrum of CHD. The accumulation of such data in a national CHD registry would allow for significant contributions to the knowledge and outcomes associate with congenital heart disease.
Funding:
The American College of Cardiology Foundation is a recognized leader in quality care and sets the gold standard for cardiovascular care through development of clinical guidelines and related decision-support tools. NCDR is the most comprehensive, outcomes-based quality improvement program in the U.S. As the preeminent data repository, NCDR is the recognized source for measuring and quantifying outcomes and identifying gaps in the delivery of quality cardiovascular patient care.
Many generous sponsors provide support for various registries within the NCDR. To illustrate the unique relationship between NCDR and its sponsor entities, NCDR includes the logos of its sponsors on many communication and marketing collateral.
For more information about helping to fund the IMPACT Registry, please click here to read about the 1 in 120 Alliance funding effort. If you have any questions or want to learn more about funding, please contact the NCDR at 800-257-4737 or send an e-mail inquiry to ncdr@acc.org .
For More Information:
If you are interested in helping to fund the IMPACT Registry or if you would just like to learn more, contact the NCDR at 800- 257-4737 or send an e-mail inquiry to ncdr@acc.org. |
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Steering Committee Members:
Gerard R. Martin, M.D., F.A.C.C. (Chair)
Charles R. McKay, M.D., F.A.C.C.
Robert H. Beekman III, M.D., F.A.C.C.
Frank F. Ing, M.D., F.A.C.C., F.S.C.A.I.
Kathy J. Jenkins, M.D., M.P.H., F.A.C.C.
John W. Moore, M.D., M.P.H., F.A.C.C., F.S.C.A.I.
Richard E. Ringel, M.D., F.A.C.C., F.S.C.A.I.
Jonathan J. Rome, M.D., F.A.C.C.
Carlos E. Ruiz, M.D., Ph.D., F.S.C.A.I.
Robert N. Vincent, M.D., F.A.C.C., F.S.C.A.I.
Workgroup Members:
Frank F. Ing, M.D., F.A.C.C., F.S.C.A.I. (Chair)
Gerard R. Martin, M.D., F.A.C.C.
Charles R. McKay, M.D., F.A.C.C.
Zahid Amin, M.D., F.S.C.A.I.
Robert H. Beekman III, M.D., F.A.C.C.
Thomas Doyle, M.D.
Allen D. Everett, M.D., F.A.C.C., F.S.C.A.I.
Thomas J. Forbes, M.D., F.A.C.C.
Ralf Holzer, M.D., Ph.D., F.S.C.A.I.
Jeffrey J. Jacobs, M.D., F.A.C.C.
Kathy J. Jenkins, M.D., M.P.H., F.A.C.C.
Joshua Kanter, M.D., F.A.C.C.
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